A long post about my brains.
As some of my faithful readers will recall, a few months ago I went off of Effexor, an effective if somewhat problematic antidepressant. Effexor, as I wrote, has a shockingly brief half-life, and because I was on a miniscule dosage (as I am a delicate flower and can only manage light sprinklings of medication) if I was even fifteen minutes late in taking it I headed into scary Effexor Withdrawal Land, a place no one wants to be. If you’re wondering what Effexor withdrawal feels like, rap on your temples with a meat tenderizer while spinning around in a swivel chair and sucking furniture polish through a straw. There you go!
Anyway, because the Effexor was meant to help me through post-traumatic stress, I decided that I would only go on it for a year because after a year apparently your brain forgets all about the bad things and goes back to humming little songs to itself and thinking about pudding. I conveniently forgot, when I chose to go med-free, that my brain is primed for things like PTSD. (There were many, many other people on the street that day, and not all of them spent the subsequent weeks cleaning their cabinets at 4 a.m. and shrieking STOP LOOKING AT ME LIKE THAT at their dogs). I also chose to ignore the years of depression and anxiety prior to the car-crash incident. I was all better, I decided. No more pills for me!
Can you see where this is going?
I remained drug-free for ten of the darkest weeks in recent memory. Here’s a tip: if you’re going to go off of medication, don’t do it in the winter, right smack dab in the holidays, when you’re financially strapped and trying to buy a house. (Actually, if you’re me, the lesson should probably be: don’t do it at all.) As I approached the lowest of the low moods I wrote this post, and told the world about my filthy pants and oversized shoes and in doing so sounded like a pervert clown, and yet was rewarded with many, many people’s boundless sympathy and support. Shortly after this I had what some might call a breakdown, if they were feeing melodramatic, or an attack of neurasthenia, if they were in a Victorian mood. Whatever it was, it felt neither colorful nor historically relevant. All I remember from the Worst Day Ever is that I called Scott and said, “If you knew how bad I felt, you’d come home right now.” And he did.
I felt that I was strong enough to go without drugs, but after a few days of complete misery I cried uncle and ran to my psychiatrist. I didn’t want to see this psychiatrist again. The biggest reason was that she doesn’t take insurance. When I had first seen her this wasn’t so big an issue; I was making money at the time, her rate wasn’t all that astronomical, and anyway I only saw her twice a year. But then as the years passed, and my insanity showed no signs of abating, I thought twice about seeing her. First of all she always called me Linda. I think the psychiatrist’s credo should be Know Thy Patient’s Name. Also she took notes about me into her voice recorder while I was in the room. “Linda has a long history of depression, marked with secondary anxiety. Also, Linda is wearing clown shoes. And should really have showered before leaving the house. What was Linda thinking?”
Despite my misgivings about this doctor and her new THREE-HUNDRED AND FIFTY DOLLAR charge for each session, I went back to her. “Why on earth!” I can hear you shrieking. I think you’re also wringing your apron with both hands, and you just dropped the freshly baked pie all over the linoleum.
I went back because I knew her, and I didn’t have the energy to find someone new and go over the whole story all over again. I went back because it was easy, and as much as I’m poor and cheap, I was also lazy and sick.
It was a mistake, though. She decided, during our (expensive) session, that in fact I was bipolar. She had been hinting at my potential bipolarity for a while. ( “My Potential Bipolarity” will be the name of my rock band. Mine mine mine. Don’t you steal it from me.) The bipolar diagnosis is a difficult one to make because the sufferer is more likely to seek help when depressed than they are when in a manic swing, so they’re diagnosed with depression. But she was smarter than that! Oh, she was so proud of herself!
Here’s why she thought I was bipolar. Are you ready? One, my grandfather might have been (according to her), and two, my heart raced at night. I don’t see anything in any of the literature on being bipolar that talks about nightly heart-racing as a symptom; I had rather thought that if I were bipolar I’d be out all night gambling or having sex with shop clerks in dressing rooms. I know I’m generalizing, but sheesh! If you’re going to call me manic-depressive, can’t I have some fun first?
And sure, my grandfather had more of the colorful madness that the rest of us boring crazy people only aspire to: all-night carousing! Writing his own biblical texts! Conversing directly with God! But I’m not my grandfather, and thank goodness for that because I don’t think Scott would want to be married to a 100-plus-year-old Italian guy who also happens to be dead.
So I disagreed, but she was insistent, and put me on a medication called Lamictal. And then I was off to Amsterdam, and didn’t think much about what this would mean, this traveling while on a brand-new drug.
Here’s another tip: don’t go on a new medication before traveling. The best I can say about the Lamictal is that it didn’t work. The worst I can say about it is it made me intensely, miserably ill. For the entire trip. Every morning I had to get up early to drink gallons of water just so that the nausea would abate enough so I could leave the room. I felt awful all day. I wanted to go out and carouse, as our sponsors were (I guess) expecting us to tell of our adventure-filled days and liquor-soaked nights, but I could barely manage one museum before a nap, and then at dinner I could manage maybe one beer. And Melissa would pat me on the head and say, “It’s okay if you're not a partier,” and I would try to say, “I'm not, it's true, but this is a little weird,” only I couldn’t get the words out because I was falling asleep. My dad wondered why I needed to nap every afternoon as much as he did. I mean, a 70-year-old getting over heart surgery, sure! Nap all you want! But a 37-year-old? That’s just sad.
Then I got home and told my psychiatrist what happened. Her response: “Oh, you can’t drink with Lamictal. I didn’t tell you that? It causes extreme alcohol intolerance. Oh, no no no no. That would make you quite sick.” She then posited that maybe, hmm, I wasn’t bipolar after all, maybe I had one of those, what do you call them, anxiety disorders. Yet somehow, instead of kicking her in the teeth, I handed her another three hundred and fifty-dollar check and got out of there.
I didn’t want to write about this on the blog for a few reasons. Sometimes I wish I had never opened up this particular can of brain-worms. The more I’ve divulged, the more I’ve felt pressured to continue this level of intimacy, and that sometimes makes me want to hide under my bed. Also, writing about mood disorders tends to bring out, well, the mood-disordered, and then they write to me and ask for advice. And I don’t give advice to people I don’t know. I don’t believe it’s helpful. I don’t want that responsibility. And I can barely manage to email my friends, much less strangers in crisis.
On the other hand, not writing about it has brought on some kind of weird blog-malaise. It’s hard to push past all the stuff I don’t want to talk about to get to anything else that’s fun or interesting. And even if I haven’t written about this directly, I’ve read my past few months of posts and I think it’s evident that I have not been at my sunniest. So I needed to get this out there.
I kept waiting to write about all this when I was on the other side, when I could look back and laugh about what a mess those few months had been. It’s still pretty messy, though. It’s not as bad as I was, but I’m not 100 percent. And I know I could go back on medication, but I don’t want to. I’ve had enough of side effects. I don’t have prescription drug coverage. And I just don’t want to.
I’m fiddling around with nutritional therapy, and I would say more about that but I’d bore you to tears. (Don't believe me? Amino acids! No more sugar! STOP CRYING!) Although nothing’s offered a dramatic, Effexor-style cure, I do feel better. And I know this is an unsatisfying post that could really use a triumphant finish. I do wish I could give you one of those.










July 13, 2006
Reader Comments (189)
I have been on many bad drugs, but have found one that works and a GREAT shrink. He remembers my name and always asks after the kids and the spouse. And he gives me good drugs and good drug thoughts.
You have a lousy shrink. You need a new one, who will work with you and tell you that going to Europe on new meds is a bad idea. Becuase once you find him or her, and you find the right drugs - the suckiness really WILL end. I promise.
Thinking of you.
http://redbook.ivillage.com/parenting/0,,91r6tb32,00.html
I have tried all the meds. Did an extensive web search when I was off insurance and learned that all SRI's do the same thing, but clear at varying speeds; therefore functioning differently in each human being's unique chemistry lab of a body. The faster they clear, the harder they are to come off of. The longer you are on any of them, the harder it is to get off them.
Effexor practically got me high at first, and then I crashed to lower than before I ever even submitted to meds in the first place--kind of the reverse of dieting and losing weight and gaining more than you had on board before dieting, but a similar major disappointment.
It is really not proven that SRI's work, but at least you don't end up shuffling and drooling when you are on them (no, that just happens when you try to get off them.) SRI's are testing out to be marginally better than sugar pills but much harder to come off. In fact give me carbs any day for a pick-me-up!
I know there are people who swear by them, but I really don't think antidepressants help me very much. I am on a low dose of generic prozac because I have learned that I cannot be a mom of 1-going-on-2 preschoolers and go through the withdrawal. It annoys me no end that I am on a medication just because it hurts to much to stop taking it.
What has helped me lately are long afternoons in the sun, in the pool, on our apt grounds. Not exactly resume-building experience but whatever gets me through a day.
Why am I saying this? Oh yeah, I am offering you support! Kudos on getting off them, hang in there with the self-care. I believe that is our best bet in the short and long run.
I want to kick the butts of doctors who diagnose, based on very little evidence and prescribe meds before a trip to frigging AMSTERDAM, without mentioning you should avoid alcohol! Do they not read DOOCE?).......but since when do they ever write a prescription that says spend more time in the sun by the pool?
My five year old has a simple philosophy of life: before you do anything, smell your toes. Don't go anywhere if your feet are dirty. In the summer, that is a pretty easy rule to live by and much cheaper than effexor.
be well.
Hmmm. How to make a long story short? My daughter is almost 1 year old, but her birth was very traumatic, and we had lots of problems early on (screaming, not wanting to nurse, etc. ... if you really want to know more about it, you can read Part Nine -- yes NINE! -- of her birth story on my blog). I finally came to the conclusion that it was related to the trauma of her birth, and through a long and circuitous process, stumbled upon something called craniosacral therapy. To preface this, let me say that I'm an engineer, and tend to approach things in a rational, scientific manner, and am not really a far-out, new agey type of person. But. The effect that CST had on my daughter was so incredibly profound, that I found myself going for treatment as well (and am also considering getting trained in it and making a career change), and I'm now stumbling onto all manner of incredible things that can be used to help heal emotional trauma and the ways in which it has manifested itself physically. So, without further ado, here are some resources that you can check into. If you want.
The Upledger Institute is the brainchild of John Upledger, who "invented" CST.
Here is the definition of CST and SomatoEmotional Release.
Here you can find a practitioner in your area. We see a massage therapist who charges $30/session for my daughter (30 minutes), and $60/session for me (1 hour). Make sure you find someone with lots of training, and that they are skilled with SomatoEmotional Release (you can see all of this information on the search page).
I was just introduced to the practice of Auricular Therapy yesterday, and in fact, am still walking around with little needles in my ears. I don't know a lot about this yet, nor am I able to direct you to a site to find a practitioner, but in a word, this stuff is amazing. I broke down on the table and cried like crazy, and felt tremendous emotional releases while this was being done. I don't know how it works. But it does.
I think homeopathy can be used to support emotional healing, although I'm still on the fence about the legitimacy of this.
And that's all I have for today. I am sorry things have been so rough lately, and I hope that you are feeling better soon.
What amazed me was that when squabbled over this, he would say that there was only one of him versus his many, many patients. So we should all remember his name, and he shouldn't be expected to remember ours. I pointed out that he had the advantage of having a chart with our names on it right in front of him - so how challenging could it be? That, and when a doctor can't get your name right, it makes you worry that they also can't get your medical history right - or remember why you are seeking treatment in the first place. It's not exactly a reassuring bedside manner.
I have recently come to the realization that my hormones play a huge part in my mood stuff. We're both women of That Age where it can become an issue, you know? I'd suggest having your OB/GYN do a once-over, look under the hood, etc., just so you know if anything's happening there. (Maybe nothing is. But before my hysterectomy my GYN informed me that I was in Premature Ovarian Failure and probably had been for years. Which explained... quite a lot, actually.)
And... ummm... as big of a supporter and lover of DRUUUUGS as I am, I'm finding there are lots of other ways to cope with anxiety, too. Do what feels right to you, and get yourself back to a place where you feel like YOU. I've been in that "I don't feel like myself" place and it's no fun. *hugs*
Good luck!
And someone may have said this above (I haven't read all the comments yet), but if you have a regular doctor you like and trust, get a recommendation from him or her for a therapist they think you might click with. You can get your drugs from your medical doctor and therapy from a non-MD, which certainly will be cheaper, and probably more relaxed and talk oriented.
Hugs, hugs and more hugs.
I was reading stevepavlina.com where he wrote about how whatever we focus on consistently is what manifests in our lives. And I realized that I absolutely had to shut up that voice in my head that keeps saying "I want to kill myself" or berating me or getting angry at the husband. So about a week ago I started chanting "I want to be happy" whenever these bad voices start up. And amazingly, I've spent more time being happy.
I think you are just so brave for discussing your depression on your blog. I could never write about my depression where people I know in real-life might find it. Also, you could absolutely never bore me with discussions of nutrition vs. depression; I totally love reading about that stuff. Actually, I love all of your writing.
I'm sending out some good vibes to NJ for you right now!
About the weird level of intimacy thing, if you'd like, we could all just pretend you never said anything. But I bet it does feel good to knock down that wall.
I was going to ask what you thought of Effexor, but I'm not sure if that falls in the advice category, so screw that, I'm just offering sympathy and a link to an awesome site (because awesome sites are the internet version of expensive chocolate): Imagination and Hell of Falling Sand are fun to play with if you like watching soothing, sort of repetitive things. Or setting fire to people. Also: cute pandas singing about mango biscuits.
I hope that you are feeling better soon.